2/3, 35-min video at the launch of GenerationR, a network of young people who advise researchers.
This is the second of three videos made at the 2013 launch of GenerationR (http://generationr.org.uk/), a network for children and young people who advise researchers who wish to do clinical trials involving children and young people.
In September 2013, the NIHR Medicines for Children Research Network ran a groundbreaking event: Generation R. Generation R was conceived, written and run by their Young Person’s Advisory Group. The event sought to engage the life-sciences industry in the importance of children’s research and the invaluable role young people have to play in its development.
Young people Mahari, Tom and Shani first interrogate Dr Jonathan Sheffield, chief executive of the Clinical Research Network Coordinating Centre in the National Institute for Health Research.
At 17:55, they interrogate Dame Sally Davies, Director General of the National Institute for Health Research and Chief Medical Officer for England.
Both interviews refer to the problems resulting from lack of research relevant to children, with the result that there is inappropriate extrapolation from research involving adults to treatment of children.
Sally Davies notes that public for support for important research is needed for research that is of little or no interest to commercially motivated researchers, and mentioned the reputational damage done to researchers in general by the examples of some researchers being ‘bought’