References (Chapter 11)
References for “Getting the right research done is everybody’s business”:
1 Oliver S, Clarke-Jones L, Rees R, et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technology Assessment Report 2004;8(15).
2 NIHR Guy’s and St. Thomas’ and King’s College London’s Biomedical Research Centre. Involving users in the research process: a ‘how to’ guide for researchers. Version 1, April 2010. Accessed 17th January 2012.
4 European Science Foundation/EMRC. Implementation of medical research in clinical practice – a growing challenge. Strasbourg: ESF, 2011. Accessed 2nd March 2017.
5 Hanley B, Truesdale A, King A, et al. Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey. BMJ 2001;322:519-23.
6 Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002;325:415-7.
7 Staley K. Exploring impact: public involvement in NHS, public health and social care research. Eastleigh: INVOLVE, 2009. Available from: www.invo.org.uk.
8 Petit-Zeman S, Firkins L, Scadding JW. The James Lind Alliance: tackling research mismatches. Lancet 2010;376:667-9.
10 Thornton H, Edwards A, Elwyn G. Evolving the multiple roles of ‘patients’ in health-care research: reflections after involvement in a trial of shared decision-making. Health Expectations 2003;6:189-97.
11 Dixon-Woods M, Agarwal S, Young B et al. Integrative approaches to qualitative and quantitative evidence. NHS Health Development Agency, 2004.
14 Institute of Medical Ethics Working Party on the ethical implications of AIDS: AIDS, ethics, and clinical trials. BMJ 1992;305:699-701.
15 Thornton H. The patient’s role in research. [Paper given at The Lancet ‘Challenge of Breast Cancer’ Conference, Brugge, April 1994.] In: Health Committee Third Report. Breast cancer services. Volume II. Minutes of evidence and appendices. London: HMSO, July 1995, 112-4.
16 Concorde Coordinating Committee. Concorde: MRC/ANRS randomised double-blind controlled trial of immediate and deferred zidovudine in symptom-free HIV infection. Lancet 1994;343:871-81.
18 Herxheimer A. Relationships between the pharmaceutical industry and patients’ organisations. BMJ 2003;326:1208-10.
20 Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002;325:415-7.
21 Donovan J, Mills N, Smith M, et al for the ProtecT Study Group. Quality improvement report: improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. BMJ 2002;325:766-70.
GET-IT Jargon Buster
GET-IT provides plain language definitions of health research terms